Tag Archives: Cystic fibrosis

Documentary Review: “My Last Days: Claire Wineland”

Online documentary follows an inspirational teenager with cystic fibrosis

Claire Wineland, 19, has cystic fibrosis. She’s living on “borrowed time” as the cliché goes, because she has lived longer than doctors led her and her parents to believe she would. Claire has faced the prospect of death for her … Continue reading

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Patients with Cystic Fibrosis Survive Longer in Canada than in the U.S.

New research reveals startling survival gap between Canadians and Americans with genetic disease, raises questions about how to improve care

A new study published in the Annals of Internal Medicine and reported by Fox News shows that Canadians with cystic fibrosis live up to 10 years longer than Americans who have the same illness. The study, funded by the United States Cystic … Continue reading

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Book Review: My Foreign Cities by Elizabeth Scarboro

A woman’s memoir of young love and learning to live life to the fullest in the face of her husband’s impending (yet with an uncertain timeline) death from cystic fibrosis

What if, as a teenager, you fell in love with a peer who was already facing their middle age years as well as dealing with declining health that would lead to eventual death at a relatively young age from a … Continue reading

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