When A Child Has A Terminal Illness

Reflections on a short, full life, part one

Each month Kathleen Clohessy, R.N., offers a new perspective on living with a terminal illness. Kathleen comes to SevenPonds with 25 years experience as a registered nurse caring for families and children facing life-threatening illness. She began her career in the Pediatric Intensive Care Unit at Nassau County Medical Center in New York, and, after relocating to California, spent 15 years as an R.N. and Assistant Nurse Manager at the Pediatric Oncology & Bone Marrow Transplant Unit at Lucille Salter Packard Children’s Hospital at Stanford. She uses her extensive personal knowledge and expertise to enlighten our readers regarding the challenges associated with chronic illness and their profound effects on family relationships and human dynamics.  

“A lifetime is a lifetime, whether it lasts for one night or a hundred years.” – Alice Hoffman, “The Museum of Extraordinary Things”

I met Jeffrey when he was 4 years old. Cute as a proverbial button, with light brown hair, a light dusting of freckles across his nose and a winning smile, he was incredibly articulate, friendly and very, very smart.

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13 Heartfelt Ways to Celebrate the Holidays with a Loved One on Hospice Care

Lightways Director of Grief and Integrative Therapies, Patrice Martin, shares her advice on celebrating the holidays in hospice care in an interview
Lights of Love holiday memorial event at Lightways Hospice and Serious Illness Care

The Lights of Love holiday memorial event hosted at Lightways Hospice Care
Credit: Lightways

The holiday season is a perfect time for remembrance and celebration, but traditions can often look a little different for families with loved ones in hospice care. Patrice Martin has collaborated with Lightways’ grief counselors, music therapists, and child life specialists to provide SevenPonds with some heartfelt ways families can create meaningful holidays with their loved ones in hospice care.

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Happy Hanukkah from the SevenPonds Team

May you always have a light in dark times.

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Understanding Fatigue at the End of Life

Dying is hard work. The dying body has little energy for getting out of bed.

Join SevenPonds each month as Tani Bahti, RN, CT, CHPN, offers practical on-hand guidance to demystify the dying process. An RN since 1976, Tani has been working to empower families and healthcare professionals to have the best end-of-life experience possible both through education and the development of helpful tools and resources. The current Director of Pathways, Tani is also the author of “Dying to Know, Straight talk about Death and Dying,” considered by SevenPonds as one of the most practical books on the topic. Founder Suzette Sherman says this is “the book I will have at the bedside of my dying parents some day, hopefully a very long time from now.”

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My Young Nephew’s Death and the Love He Never Had

The quiet causes behind an overdose
a young boy in michigan with queen Anns lace who would die of an overdose at 19

Mac as a sweet young boy

This is the story of Libby as told to Jeanette Summers. Our “Opening Our Hearts” stories are based on people’s real-life experiences. By sharing these experiences publicly, we hope to help our readers feel less alone in their grief and, ultimately, to aid them in their healing process. In this post, Libby talks about losing her nephew to a drug overdose, and the family forces that tragically shaped his short life.

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Virtual Reality Exposure Therapy for Near-Death Experiences May Reduce Death Anxiety

Recent study shows that immersive VR exposure to death significantly reduced anxious thoughts about death
a person wearing a virtual reality headset

a person wearing a virtual reality headset (not related to the study)

credit: lyncconf.com, Wikimedia Commons

Death and mortality are often considered taboo subjects in many cultures, especially in many parts of North America and Europe. Thoughts surrounding death may even bring about anxiety and stress for many, which can interfere with daily life. While normalizing and exposing oneself to one’s mortality can help reduce these anxious thoughts through exposure therapy, researchers and medical professionals have yet to find a way to “expose” those with death anxiety, or thanatophobia, to the experience of dying—until now.

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