Because of Ezra Raises Funds and Awareness About Neuroblastoma
Instagram of first Christmas Eve with Ezra
Over 600 children in the United States are diagnosed each year with neuroblastoma, one of the most common pediatric cancers. With no cure for relapsed nb and poor prognoses for high risk cases, one child will die every sixteen hours from the disease.
800days.org is a project of Because of Ezra, an organization that helps educate the public and raise funds to research cures for neuroblastoma and other pediatric cancers. The organization is run by the parents of the late Ezra, who was just 800 days (just over 2 years) old when he died from neuroblastoma. You can see stories people are sharing at their website.
In the video below, Brooke Hester and her mother, Jessica, share their story of fighting neuroblastoma, a children’s cancer. (Joel McHale introduces.)
Don’t see the video? Click here to watch it at YouTube.
Through 800days.org and the #800days Twitter hashtag, the group is sharing stories of others affected by the disease and raising awareness. They help fund relevant research and clinical trials to make a difference in the lives of children and families who still have a chance to overcome neuroblastoma.
Follow @becauseofezra for updates, learn more about how they’re helping, and show your support by making the pledge to give here.
“Making Mobiles” by Karolina Merska
“Hands Up to the Sky” by Michael Franti & Spearhead
Sorry to be picky, but I have to disagree with your statement that neuroblastoma has “no cure”. I agree the survival rates for neuroblastoma are not good, compared with other paediatric cancers. But chemotherapy, radiotherapy, surgery and high dose chemotherapy with autologous stem cell transplant can cure neuroblastoma, and with new treatments like immunotherapy the survival rates are improving (20-40% depending on age, stage etc). There are plenty of children around the world who are living healthy, cancer-free lives after neuroblastoma.
I am only commenting, and being this picky, because I hate the idea that a family with newly-diagnosed neuroblastoma would come across this page and read “no cure”. That would just shatter their hope, and with neuroblastoma there usually is a place for hope.
Report this comment
Thank you for your comment — we certainly don’t want to shatter hope for parents dealing with such a tough situation. The organization we’re featuring, in fact, wants to *offer* hope to families. You’re right that treatment can cure low-risk nb, especially in younger cases. The statement that there’s no cure refers to the disease in advanced stages; I’ve added this clarification to the post.
Report this comment
Thanks so much for amending the post.
Just for info, I believe the 20% statistic applies to Stage IV, and even with advanced stages cure is possible, but relapse is indeed a much more difficult situation, sadly.
Thanks for taking my comment on board.
Report this comment
A heart warming response of Facebook shares towards a heart wrenching cancer. We had hoped to help raise awareness with our post. We thank everyone who came to visit this post.
Report this comment